Skip to content

Posts tagged ‘autism’

Kids First

Mike told me a funny little story the other day. This past Friday afternoon there was a meeting at our house regarding at-home therapy for the boys. Not the type of therapy for kids going through a difficult time or anything like that, but the kind of therapy designed to help kids with autism. Since Erin (the boys’ mom) had them on Friday, she let herself into our house and was waiting for Mike to get home so they could wait for the entourage of two therapists and the person in charge to arrive to meet the boys and then discuss with us what to expect, etc. I say “us” even though I wasn’t there. I would have been there, but I didn’t know about it until that day and thought it was a quick meeting in an office somewhere. Had I known it was a three hour thing at our house, I would have changed my plans and been there. As a result, the next day Erin and I discussed her including me in group texts about what is going on with the boys because, well, we both know Mike.

Anyway, the funny story was that when Mike got home and found Erin there with the boys, Liam said to Mike, “Hey Daddy, this is Mommy!” He said it more than once. He thought this strange enough to point out. In his world, Mommy and Daddy are in two separate houses and though there are pick-ups and drop-offs and instances where we are all together in the same place, Liam isn’t used to his mom hanging out at the house where his dad lives.

That story made me think of my own son, Jarrod, who was also a child of divorced parents at a very young age, but for many reasons (that some of you know because you know my story or you follow this blog), there was nothing civil or friendly about my break-up with Jarrod’s father, Joe. We communicated only when absolutely necessary. In fact, early on, he didn’t even know where we lived.

I had hoped that we would one day get beyond that animosity. I envisioned time healing all of our open wounds. As ridiculous as it sounds given our history, I thought we could let the past go and be friendly one day. I attempted to when Jarrod got older by inviting Joe to his high school graduation party at my parents’ house, but he declined.

What brought us together was Jarrod’s cancer diagnosis at the age of 20. Why does it take something so catastrophic to get two people to set aside their grievances and breath the same air inside the same tiny room? We didn’t drive together to Stanford University Medical Center to discuss the next steps after the diagnosis, but we met there, and the three of us huddled together waiting for Dr. Ronald Levy to walk in and tell us something that would allow us all to sleep that night. It was a two hour wait. This doctor was the leading authority on Lymphoma and as a favor to my brother-in-law’s roommate whose girlfriend was a colleague on the fundraising for research side of things, (I think I got that right), we were gratefully squeezed in for a consultation. I would have waited all night for a sit-down with that doctor.

I don’t remember all that much about the wait because my state of mind during that time was one that only allowed me to go through the motions of living. I had one mission. And that was to find the right person for the job of making my son healthy again. But I do remember that Joe and I were both calm, united together by the same feelings we had for Jarrod. We were the only two people in the entire world who knew how the other felt during that time, and if that was all we had left of what was once “us,” then at least we had that.

Despite the circumstances we were able to share a few laughs with Jarrod. That I remember. And like Liam, though it was a different kid, a different time, and a different place, I remember something Jarrod said when Joe left the room to go to the cafeteria to get us something to eat. He said, “This is so weird.” I asked, “What’s weird?” He said, “You and dad in the same room with me.”

Incidentally, we all slept better that night.

Jarrod and Liam

Jarrod and Liam

 

 

Strides

Blog2

This morning as I was walking the boys to school I was reflecting on the progress they have made this past year, though really I think the shift has been in just the last few months. I was forced to reflect upon this because Liam wouldn’t stop talking. When we came to the crosswalk he said, “Wait!” And he was yelling at the cars to stop. I said, “That’s right, we have to wait for all the cars to stop.” This made me smile because I’m the one that usually tells them to wait each and every time we approach the corner. I often talk to the boys the entire walk to school even though I may be the only one talking. I know that this is one of the best things you can do to help children learn language and communications skills and with their delays in this area, well, I just keep talking.

This morning Liam took over. It seems that all of a sudden he is bursting with vocabulary that had previously been held in some part of his brain that he didn’t have access to. Sure, he had a lot of words, but now he has phrases, questions, comments, and answers. It’s wonderful. He basically had a commentary going about everything on our walk. After we crossed the street, he looked straight up and said, “What’s that?” I said, “That’s the sky, and clouds,” and he said, “and birds, there are birds flying.” I said, “That’s right! They are waaaay up high. I didn’t see them until you told me!” At the same time, the first drops of rain started to fall. He said, “That’s rain, that’s water from the sky.” Then a woman passed us with a stroller. He said, “Hi baby.” Then we walked up the hill and he said, “There’s a baseball game.” I explained the difference between a baseball game and a baseball field. He was already onto, “There’s a gate. It opens.”

You get the idea. Last night he had a commentary with his dad in the kitchen as the pizza was cooking in the oven. There’s a lot to be said while you are hungry and waiting for your favorite pizza. I could tell Mike was loving it and what I’m realizing is that these are the first real conversations taking hold. With that, I’m noticing that he is finding his voice. For the most part, he is an easy going kid and very compliant, but the other night he yelled at his dad, “Get out of my room!” Mike said, “Okay.”

Finn is making good progress with talking too, but I can probably save his story for another blog. Suffice it to say he has a very strong will and prefers things to go his way. For example, he won’t walk to school without his stuffed kitty. He’s fine to hand it over when we get to his class so I can take it back home though. I’m not sure what people think when they see a grown woman walking with a stuffed kitty in her arms.

Blog

Drifting Through

Welcome to the inner workings of my mind

In Pursuit of Adventure

Exploring the World, One Culture at a Time

Carrie Cariello

Exploring the Colorful World of Autism

Pao Family Wellness

Natural Health and Parenting

Tertulia Taurina de Arizona

Celebrating Taurine Culture in Arizona

Kelly Danek

Wired for Whimsy

heart on a sleeve

flotsam, jetsam, words & images by patricia kennedy

Alex

Alex at Home

You've Been Served

The Good. The Bad. The Customer Service.

cleansheetsmaine

The greatest WordPress.com site in all the land!

Jules on the way

On the way to what, I still don't know.

Extra Buttons

Writing what it is I have to say. . .

%d bloggers like this: